Have your say 

Fill in our survey to help us make the government understand what needs to change for people living with complex disabilities. 

It takes about 25 minutes to fill in and if you have complex disabilities, it’s open to you. The survey closes on 11 April.

A woman with short grey hair has a coat on and is smiling. She's standing in front of the sea.

You’re the people who matter. Your lived experience really matters and people need to know about it.

Otherwise, people don’t know that things need to change. And things really do need to change.

Lilias, whose son Fearghas is supported by Sense

What’s in the survey?

We’ll be asking about things like:

  • Your experience of accessing health care. For example, are your communication needs being met at appointments?
  • Your hopes for the future and the support you need to achieve those goals.
  • Your experiences socialising
  • What you think needs to change to improve the lives of disabled people.

What happens to the results?

We’ll use the results of the research to campaign for change across the country, so you’ll be helping us make a difference to disabled people’s lives.

Last year we used the results to:

  • Feed into our influencing activity including MP briefings and consultation responses.
  • Give us a better understanding of the issues that are important to people with complex disabilities including those who are deafblind.
  • Supported further research and work on employment.

Is this survey for me?

This is for you if you live with complex disabilities. If you support someone with complex disabilities, you can help them complete the survey.

Complex disabilities means one of the following applies to you:

  • You have dual sensory impairment, multi-sensory impairment or are deafblind.
  • You have sight or hearing loss, with additional needs (e.g. learning or physical disabilities, or autism)
  • You have combination of other needs – this may include learning disabilities, physical disabilities or autism.

If the online survey isn’t accessible for you, or you’d prefer to share your experiences in another way, please get in touch by emailing [email protected] and we can set up an interview with an interpreter or another alternative format that works for you.