Support for people with Usher syndrome

Speak to our Usher team

We’re here for everyone with Usher syndrome, and everyone caring for someone with the condition.

Get in touch by emailing the team directly on [email protected] or contact our information and advice service.

Our expert team offers one-to-one support for people with Usher syndrome and their families. 

Having Usher syndrome shouldn’t stop you from living the life you want to live. 

Here at Sense, we offer support for people with Usher syndrome of all ages. Whether you’re an adult looking for employment advice, or the parent of a child who’s just been diagnosed, we’re here for you. 

Our specialist Usher team can help you with:

  • Learning all about Usher and different ways to communicate.
  • Support with education, training and health and social services.
  • Employment and benefits advice.
  • Usher syndrome online support networking groups.

We don’t only offer support to people with Usher syndrome, but everyone with complex disabilities. If you’d like support from Sense, get in touch with our team to talk it through.