CHARGE syndrome: support and management from birth

This page is a brief introduction to the support and management of CHARGE syndrome from birth.

It covers the range of health, educational and other professionals involved in early care interventions. 

There are links to other Sense CHARGE syndrome pages covering the medical management of specific conditions in more detail. 

You’ll also find links to external sites for more detail on some of the surgical procedures included here, and other information.

On this page:

Sense is here for everyone with CHARGE syndrome

We offer support all over the UK. Whether you need some expert advice, a place to socialise, or help with communicating or getting around, we offer something for everyone. Because no one should be left out of life.

To find out what kind of support we could give you or your loved one, speak to one of our friendly team.

Specialist support from birth

There are many ways of treating and managing the different symptoms of the condition. 

As symptoms of CHARGE vary greatly from one child to another, children will usually see many different specialists – this is known as a multidisciplinary team approach.

This multidisciplinary team approach will give your child the best long-term care. 

Birmingham and Manchester have dedicated paediatric clinics for children with CHARGE syndrome. There is also an adult clinic in Birmingham.

Early intervention

As part of the early intervention to treat and manage your child’s CHARGE syndrome, you and your child will probably work with many healthcare, educational and other professionals. 

These professionals might include:

  • Audiologists (for hearing).
  • Dietitians.
  • Educational psychologists.
  • Educators.
  • Orthoptists (for sight).
  • Ophthalmologists (for sight).
  • Occupational therapists.
  • Portage (home visiting educational service for pre-school children with special educational needs and disabilities (SEND)/early years teachers).
  • Physiotherapists.
  • Sign language tutors.
  • Social workers.
  • Speech and language therapists.
  • Teachers of children who are deaf or hearing impaired.
  • Teachers of children who are visually impaired or blind.
  • Teachers of children who are multi-sensory impaired (MSI)/deafblind.

Read more about special educational needs and disabilities (SEND).

You can read more about the treatment and medical management of specific features of CHARGE syndrome and related difficulties on the following pages:

Get support from Sense

We’re here for people with CHARGE syndrome and their families.

This content was last reviewed in July 2023. We’ll review it again in 2025.