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Usher syndrome

This page covers Usher syndrome, a condition that causes hearing loss, sight loss and balance problems.

It is present from birth but can take years for symptoms to appear and is usually diagnosed in older children or teenagers.

Find out more about Usher Syndrome

Lady smiling whilst signing to her friend

What is Usher syndrome?

Usher syndrome is an inherited genetic condition. It causes sight loss, hearing loss and other symptoms.

Causes and diagnosis

This page covers the different types of genes that cause types of Usher syndrome, and your chances of inheriting or passing on the condition.

Treatment options

This page covers treatments for Usher syndrome types 1, 2 and 3, and for retinitis pigmentosa.

What do I tell my child?

If your child has been diagnosed with Usher syndrome, it can be difficult to know how to talk to them about it.

Walking safely when you have Usher

Learn more about available canes and mobility aids, communicator guides and guide dogs.

Living with Usher

Find out more about how to get support for Usher, and how your family and friends can help.

The Sense Usher Service

With the right support, you can overcome the challenges presented by Usher syndrome, and live a full independent life. Read more about how the Sense Usher Service can help you.

Contact us at [email protected] for more information.

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This content was last reviewed in July 2023. We’ll review it again in 2025.