Usher syndrome
This page covers Usher syndrome, a condition that causes hearing loss, sight loss and balance problems.
It is present from birth but can take years for symptoms to appear and is usually diagnosed in older children or teenagers.
Find out more about Usher Syndrome
What is Usher syndrome?
Usher syndrome is an inherited genetic condition. It causes sight loss, hearing loss and other symptoms.
Causes and diagnosis
This page covers the different types of genes that cause types of Usher syndrome, and your chances of inheriting or passing on the condition.
Treatment options
This page covers treatments for Usher syndrome types 1, 2 and 3, and for retinitis pigmentosa.
What do I tell my child?
If your child has been diagnosed with Usher syndrome, it can be difficult to know how to talk to them about it.
Walking safely when you have Usher
Learn more about available canes and mobility aids, communicator guides and guide dogs.
Living with Usher
Find out more about how to get support for Usher, and how your family and friends can help.