Current campaigns

Achieving long term independence

What we are looking at and why?

We know that family members often become the predominant carers for their loved ones. As a consequence, those being cared for may not always have the independence they would like and those providing care ask themselves ‘what will happen to my loved one when I can no longer support them?’ This can be a major concern and cause of anxiety for many families. We want to find out how widespread this problem is for people with complex needs and their families.

We are interested in hearing all experiences – good and bad. Therefore if this issue is relevant to you but you are not concerned about the future, we still want to speak to you.


Families affected by this issue can complete our online survey.

Accessibility: We want to ensure that everyone can feed in and participate fully. If you, or someone you know would like to take part but have accessibility requirements, please contact us and we will do our best to meet these.


Telephone (voice): 0300 330 9258 or Telephone (text): 02075202600


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First published: Tuesday 20 December 2016
Updated: Thursday 19 January 2017