Nadia and her family are learning to communicate in new ways.
Nadia, who is now two years old, was born with CHARGE syndrome, which affects her vision, hearing and balance. Although she’s a very happy child, she used to become very anxious and upset when she was away from her mum, even for a few moments. As a result Ewa worried that Nadia would begin to miss out on important chances to learn, play and make friends if she wanted to be held by her mum all the time.
Nadia and her family have taken part in Sense’s ground-breaking Tuning-in programme, which helps families with deafblind children communicate. This consists of an initial one-day workshop where parents and carers start to discover the different ways in which young deafblind children may communicate and how they can use that knowledge when with their own child. This is followed up by home visits to support parents to find effective ways to communicate with their child. It helps parents better understand the unique signals that can be missed in day-to-day life - signals that may offer vital clues to the wants and needs of their child.
Nadia’s mum, Ewa, says:
"Tuning-in has helped me understand more about Nadia. Sometimes you just don’t know what to expect when your child has special needs."
Watch this lovely video clip from one of Nadia and Ewa’s Tuning-in sessions.
First published: Monday 30 September 2013
Updated: Tuesday 22 December 2015