Usher publications
You can download the documents below which contain information about living with Usher syndrome and advice for helping people with Usher to live with confidence.
Publications
- Living with Usher syndrome (pdf, 65kb)
An introduction to Usher syndrome and the services Sense offers to support Usher people and their families.
- The experience of parents (pdf, 57kb)
Finding out your child has Usher and helping them to come to terms with this.
- The experiences of brothers and sisters (pdf, 55kb)
The impact of Usher on the whole family how to support siblings.
- The experience of partners (pdf, 67kb)
Finding the best way to support your relationship, deciding whether to have children.
- Fact and fiction (pdf, 56kb)
Getting some facts straight about Usher.
- Mobility and travel (pdf, 65kb)
How to get around safely if you have Usher.
- Useful tips when you meet someone with Usher (pdf, 54kb)
- Brief history of Usher syndrome (pdf, 49kb)
- Usher, Cochlear Implants and You
Information about Cochlear Implants for young people with Usher syndrome
- Different communication methods for people who have Usher / deafblindness
Factsheets and leaflets on communication and sharing information with deafblind people.
- Sense's Talking Sense magazine articles on Usher syndrome
- My life as a tightrope walker
A Talking Sense article about a young mother with Usher describes her experiences.
- The healing touch
A Talking Sense article about the massage and how it can help people with Usher.
- Deafblindness and mental distress
A Talking Sense article about a new research on the mental distress that some deafblind people experience.
