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Elliot, a young deafblind boy

Sense is running a special TV appeal for our work with children who are both deaf and blind.


You can watch the appeal or read the transcript. Please make a donation now and help us bring a child like Elliot into our world.

Sense is the leading national charity that supports and campaigns for children and adults who are deafblind

Usher syndrome

There are several different types of Usher syndrome. These are caused by different genes.

Usher Type 1
People with Type 1 are profoundly deaf from birth, with poor balance. The progressive eye condition, Retinitis Pigmentosa (RP for short) can be noticeable before the age of 10

Usher Type 2
People with Type 2 have a partial to severe hearing loss from birth. Their balance is normal. The RP is usually, but not always, noticeable before the age of 20

Usher Type 3
This is the rarest type of Usher in the UK. People with Type 3 have normal sight and either normal or partial hearing at birth. The deterioration of the hearing and the diagnosis of the RP commonly happen at roughly the same time, either in adulthood or, occasionally, in children or teenagers. Balance can become affected over time

 
 
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