21st century CHARGE conference

New developments in the field of CHARGE syndrome

The first ever UK national conference dedicated to CHARGE Syndrome in the UK took place near Reading, Berkshire from 11 to 13 March 2011.

The conference's rich and varied programme focused on the most current practice over a range of areas, including recent genetic developments, early interaction and communication development, and current understanding of behaviours in CHARGE syndrome.

You can view the resources in PDF format below from the conference, including presentations from acclaimed international speakers.

Resources for families

An overview of CHARGE syndrome (pdf 91kb)
CHARGE for Beginners (pdf 94kb)
Coming of Age (pdf 77kb)
Hormones in CHARGE syndrome (pdf 74kb)
Moments of togetherness (pdf 336kb)
Parenting children with CHARGE (pdf 144kb)
Puberty and smell in CHARGE syndrome (pdf 50kb)
Sensory processing (pdf 574kb)
Sources of challenging behaviour (pdf 218kb)
Successful teaching strategies (pdf 183kb)
The challenge of mealtimes (pdf 547kb)
The genetics of CHARGE (pdf 133kb)
The heart in CHARGE (pdf 279kb)

Resources for professionals

Hormones in CHARGE syndrome (pdf 74kb)
The genetics of CHARGE (pdf 26kb)
The impact of relationships (pdf 1060kb)
An overview of CHARGE syndrome (pdf 91kb)
Sources of challenging behaviour (pdf 177kb)
Successful teching strategies (pdf 183kb)
The challenges of mealtimes (pdf 549kb)