Publications and downloads
Living with Usher: a brief history of Usher syndrome
history_usher_syndrome.pdf
history_usher_syndrome.txt
history_usher_syndrome.docLiving with Usher: facts and fiction
Getting some facts straight about Usher.
usher_facts_fiction.pdf usher_facts_fiction.txt usher_facts_fiction.docLiving with Usher: mobility and travel
How to get around safely if you have Usher.
usher_mobility.pdf usher_mobility.txt usher_mobility.docLiving with Usher: the experience of parents
Finding out that your child has Usher and helping them to come to terms with this.
usher_experience_of_parents.pdf usher_experience_of_parents.txt usher_experience_of_parents.docLiving with Usher: the experience of partners
Finding the best way to support your relationship; deciding whether to have children.
usher_experience_of_partners.pdf usher_experience_of_partners.txt usher_experience_of_partners.docLiving with Usher: the experiences of brothers and sisters
The impact of Usher on the whole family and how to support siblings.
usher_brothers_and_sisters.pdf usher_brothers_and_sisters.txt usher_brothers_and_sisters.docLiving with Usher: useful tips when you meet someone with Usher
usher_useful_tips.pdf usher_useful_tips.txt usher_useful_tips.docLiz Ball interview about radio for deafblind people on Radio 4's In Touch programme
liz_ball_in_touch_interview040613.txtLong term implications of Congenital Rubella Syndrome (CRS)
This report feeds back on a project that was established to examine the long-term health profile of those who were affected by rubella pre-natally and enable doctors to be aware of the range of health difficulties likely to be experienced by people with CRS.
Long_Term_Implications_CRS.pdf Long_Term_Implications_CRS.doc