The Autumn issue of our newsletter (pdf, 379kb) includes a story about a four year old little girl called Renee. Renee has Lissencephaly and an associated disorder, Miller Dieker Syndrome. This is characterised by a pattern of abnormal brain development, where the brain is smoother, with fewer folds and grooves. It results in severe disability, including blindness, hearing and feeding difficulties. This, together with Renee also having an uncontrollable epileptic condition called infantile spasms, means she needs constant one-to-one care.
When Renee was born, her mum and dad were thrown into a daunting world of hospitals, doctors and medication. But as soon as they arrived with their tiny baby at Sense’s Woodside Family Centre, they were given a warm welcome. And thanks to our supporters, Sense have been there for the whole family ever since. Even Renee’s brothers and sisters often join her on the visits to the centre, so they are fully involved and can enjoy playing too. Renee’s mum told us:
“Last year, when I picked them up from Woodside’s holiday playscheme, my son who was eight at the time turned to me and said, ‘You know Mummy, if it wasn’t for Renee we wouldn’t be able to come here.’ So even he realises what a special place it is.”
Read the Autumn newsletter (pdf, 379kb) in full to know more about the other children that Sense helps.
If you would like to donate to Sense please call the donation hotline on 0845 127 0067 or donate online.
Thank you for your support.
