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Family penpals

Listed below are the family penpals. Click on their names to find out more about them and make contact.

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  • Penpals - Amanda I would love to chat to other Usher parents, or usher people, or just anyone really. It would be nice to chat to people in our own area, but we seem to be few and far between, so don't mind how far away you are. I would love to chat to other Usher parents, or usher people, or just anyone really. It would be nice to chat to people in our own area, but we seem to be few and far between, so don't mind how far away you are.
  • Penpals - Birgit Lives in Black Forest, Germany. "I hope to get contact to other families and perhaps also to find girlfriends for our daughter who are like her."
  • Penpals - Brian Lives in Milton Keynes. "I am the husband of a Usher 2 wife. Struggling to be father and hubby and need of some support from males or females."
  • Penpals - Dawn Lives in Luton, UK. "I am the mother of a 10 year old boy who is partially sighted, has a hearing impairment and severe learning disabilities. I would like to hear from other parents who have experience of secondary special school education in Bedfordshire or Hertfordshire."
  • Penpals - Deanna Lives in North Carolina, USA. "I would like to talk to families of children with Usher syndrome to find out how they have handled. I want to know what I can do to ensure my son has a full life."
  • Penpals - Emma Lives in Essex, United Kingdom. "I would like to to talk to families who understand what we are going through."
  • Penpals - Emma Lives in Essex. "We have a son who was finally diagnosed with Usher syndrome type 1, and even though we are not suffers sometimes we shut out as no one understands or knows what Usher is. It would just be nice to speak to people that understand our situation."
  • Penpals - Gemma Lives in Basingstoke, Hants. "I have a two year old son, Thomas who has CHARGE syndrome. I would love to hear from other people affected by CHARGE."
  • Penpals - June Lives in Crawley, West Sussex. "I am the mother of a 9 year old boy who has Ushers Syndrome - I am very interested to speak to other parents of children with this disability."
  • Penpals - Lesley I would like to have someone to chat to regarding CHARGE syndrome. I have a little girl called Ruby. She is two years and six months old and has CHARGE Syndrome.
  • Penpals - Marsha Lives in St Albans, Hertfordshire. "I am very nervous about the future for my daughter even though she is very independent and is presently at university studying law. I would really like to talk to other parents in a similar situation for mutual support."
  • Penpals - Natalie Lives in Northern Ireland. "I'm mum of a three year old girl born with a rare chromosome disorder. She is partially sighted with no eye condition diagnosed as yet. I would love to chat to other parents of partially sighted / special needs children."
  • Penpals - Natalie Lives in West Sussex, UK. "I would like to hear from any parents who have a child with visual and / or any other disability."
  • Penpals - Nikki Lives in Kent, England. "I would love to hear from parents of a deafblind child who has had their child start primary school."
  • Penpals - Olive Lives in Uganda. "I would like to share ideas about deafblindness and I am looking for assistance as well."
  • Penpals - Terri Lives in Northern Ireland. "I have a nine month old little boy who has CHARGE syndrome. I would love to hear about other families' experience and how they cope."