Jo Milne - Usher Peer Mentor Coordinator at Sense has had a cochlear implant operation

28 March 2014

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Jo Milne has Usher syndrome, a condition that affects both hearing and vision. Jo was born deaf and started losing her sight in her mid-20s. Now in her 40s, Jo had a cochlear implant operation last month and was able to hear for the very first time.

Jo works for Sense in the Usher Specialist Service Team offering support as a peer mentor to people with Usher.

A video capturing the switch-on of her cochlear implant was recently featured in a Daily Mail article. Hearing for the first time Jo is amazed by the sound of her own voice.

The video has had almost one million YouTube hits so far and the Daily Mail article more than 27,000 shares on social media, raising awareness around Usher and deafblindness.

Richard Kramer, Sense Deputy CEO, said:

‘We are very grateful to Jo for sharing this moving story. She’s doing a remarkable job raising awareness of Usher – a rare condition that often starts with deafness and then leads to visual impairment and even complete loss of vision. It is very brave of her to make a personal moment public to inspire deafblind people around the world.”

Jo’s story has been featured in the Independent, the Telegraph and the Daily Express and TV news channels all over the world.

Read the Jo Milne story
Read more about cochlear implants
Read more about Usher syndrome
Find out more about deafblindness
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