New developments in the field of CHARGE syndrome

The first ever UK national conference dedicated to CHARGE Syndrome took place near Reading, Berkshire from 11 to 13 March 2011.

The conference's rich and varied programme focused on the most current practice over a range of areas, including recent genetic developments, early interaction and communication development and current understanding of behaviours in CHARGE syndrome.

You can download the papers and other resources, including presentations from acclaimed international speakers, below.

An overview of CHARGE syndrome

CHARGE for beginners

Coming of Age

Hormones in CHARGE syndrome

Moments of togetherness

Parenting children with CHARGE

Puberty and smell in CHARGE syndrome

Sensory processing

Sources of challenging behaviour

Successful teaching strategies

The challenge of mealtimes

The genetics of CHARGE

The heart in CHARGE

The impact of relationships